By LYDIA WARREN
Trooper: Two-year-old Tripp Roth suffers from a severe skin disorder, junctional epidermolysis bullosa. The disease, which affects one in 50,000 people, means his skin is easily blistered and scarred by touch and heat
Most children his age are fearlessly bounding through the milestones, learning to walk, talk – and cause as much havoc as possible.
But for two-year-old Tripp Roth, an excruciating skin disorder that causes his skin to blister and scar at the lightest of touches confines him to a life inside, wrapped in bandages.
The toddler, from Ponchatoula, Louisiana, suffers from junctional epidermolysis bullosa, which his supporters call ‘the worst disease you have never heard of’.
Dependent: Tripp's mother Courtney Roth, pictured, left her job as a nurse to care for her son full time
It has claimed his sight and speech – and means he cannot even bathe without taking powerful sedatives.
Due to the life-long genetic disorder, which affects 1 in 50,000 people, his skin is missing a protein that binds one layer to another.
Severe: Tripp, who lost his sight because of the scars on his eyelids, breathes with the help of a trachea tube
Early days: When Tripp was born, a few blisters on his body alerted doctors to the disease. He is now wrapped in bandages daily to ensure his skin does not come into contact with any heat or touch that could damage it
But Tripp, who has not been outside for a year, has outlived all medical predictions.
‘He certainly astounded his doctors,’ his mother Courtney Roth, 26, told ABC News.
Happiness: Tripp's mother Courtney Roth, pictured, said the toddler's spirit and personality keep her going
‘We were given a little angel and we have to take care of him,’ Hotard, 51, told ABC.
‘It has its rewards and he is happy because his mom is so happy. She is always upbeat around him because that is what he deserves.’
Laughter: On her blog, Courtney wrote: 'Though caring for him is a very tough job, I would not trade any of it for a second. Being Tripp's Mommy has brought so much joy and happiness into my life'